Know Your Genotype
Know your family ancestral history
HB SS, SC and SB+THALASSAEMIA
WHAT HAS SICKLE SMART DONE?
Since 2011, sickle smart has supported 28 SCD adolescents and children with psychosocial counseling, monthly medication, follow-up clinical and educational support.
Carried out screening in the peninsula area, in collaboration with Dr cheedy Jaja
Offers Haemoglobinopathy counselling
Collaboration with Gila Children’s and community Hospital, BO and SCDS, Freetown
Contributed to increasing public awareness about SCD through media engagement and other means of public education and website and FB.
Screening has led to many families understanding why some members of their family are SS, SC or AS (trait)
Research shows people with sickle cell experience:
Several psychosocial issues such as anxiety, depression, social withdrawal, aggression. poor relationships, and poor school performance. We work closely with our service users to support them to engage with their support bubbles including families and close community;
Our public outreach services helped break barriers between families and patients. our service users also benefit from our close relationship with specialist who provide clinical and psychological interventions where support is needed;
During COVID-19, we supported SCD Warriors with medication, provisions, and information on how to keep and stay safe who were quarantined.